TOF Videos

Here is a You Tube video of a child that went through the same surgery that Lili is going to have.

Gives you an idea of what she will look like in the hospital. Might be hard for some to watch, but very informative.

The video is made up of still pictures.

http://www.youtube.com/watch?v=jR3VjQVtObs

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This video is more from the medical side of things. It has a great animation of what they are actually going to do.

http://www.youtube.com/watch?v=Sl6RoaLyIgw&feature=related

Lili Surgery Date

After a few months of visits to the Cardiologist, we finally have a surgery date for Lili. Lili was diagonsed with Tetrology of Fallot with absent pulmonary value while still in the womb. She needs an operation now to patch a hole in her heart. Once her heart is adult size, she will have a value replacement operation.

She will be operated on Tuesday November 16th. We have to go to the hospital on Monday the 15th for pre surgery. The operation (to patch the hole in her heart) will take 5 hours. After the surgery she will spend two nights in the CICU. While in the CICU she will have a breathing tube, chest tube, and an external pacemaker.

After the CICU, she will be transfered to a step down room.

Lili will be in the hospital for 6 to 7 days.

I'll be using this blog to update everyone on our experience. There will be pictures that might be disturbing to some people. Our goal is to document everything we are going thru and see from here on out. If even one family with a simliar situation can learn from our experience then it will all be worth it.

We can't thank everyone enough for the support you have given us already. It really means a lot to us.